Helpful Resources

Organized by Topic

CANCER101 has compiled a short list of resources by topic to help narrow your search. This list will get you started on your journey for knowledge, data and support. Most organizations listed in this section offer much, much more than suggested by each topic breakdown. Visit their websites or call the organizations to learn more about what they offer.

The inclusion or omission of websites and resources does not imply an endorsement or lack of endorsement by CANCER101. You should always consult your healthcare team for advice and care appropriate for your specific medical needs. To find resources specific to a cancer type, please refer to Navigating Cancer.

Caregivers



Caregiver Action Network
202-454-3970
http://www.caregiveraction.org/

SuperSibs!
888-417-4704
www.supersibs.org

Teens Living With Cancer
585-563-6221
www.teenslivingwithcancer.org

Clinical Trials

ClinicalTrials.gov
1(301)496-4000
www.clinicaltrials.gov

Coalition of Cancer Cooperative Groups, Inc.

1(877)520-4457 toll free
www.cancertrialshelp.org

National Institutes of Health
1(301)496-4000
www.nih.gov

Chore Coordination

CareCalendar
www.carecalendar.org

Cleaning for a Reason
1(887)337-3348
www.cleaningforareason.org

Complementary & Alternative Medicine

National Center for Complementary and Alternative Medicine (NCCAM)
1(888)644-6226 toll free or 1(301)519-3153
www.nccam.nih.gov

Connecting & Communicating


CaringBridge
1(651)452-7940
www.caringbridge.org

Imerman Angels (matches patient to a survivor)
(877)274-5529 toll free or (312) 274-5529
www.imermanangels.org

MyLifeLine.org Cancer Foundation
1(720)883-8715
www.mylifeline.org

Drug Information

Food and Drug Administration – Cancer Liaison Program
1(888)INFO-FDA (463-6332) toll free or 1(301)827-4460
www.fda.gov/forconsumers/byaudience/forpatientadvocates/cancerliaisonprogram/default.htm

NLM Drug Portal
druginfo.nlm.nih.gov/drugportal/drugportal.jsp

Emotional Support



Cancer Support Community
1(202)659-9709
www.cancersupportcommunity.org

Workplace Issues

Cancer and Careers
1(646)929-8032
www.cancerandcareers.org

Cancer Legal Resource Center
1(866)THE-CLRC (843-2572) toll free or 1(213)736-1455
www.disabilityrightslegalcenter.org/about/cancerlegalresource.cfm

Hospice & End-of-life

Hospice Education Institute
Machiasport, ME 04655
1(800)331-1620 toll free or 1(207)255-8800
www.hospiceworld.org

National Hospice Foundation
1(877) 470- 6472
www.nationalhospicefoundation.org

Financial Assistance

CancerCare, Inc.
1(800)813-HOPE (813-4673) toll free or 1(212)712-8400
www.cancercare.org/financial

GiveForward
pages.giveforward.com

HealthWell Foundation
800-675-8416
www.HealthwellFoundation.org

Hill-Burton Free Hospital Care
1(800)638-0742 toll free
www.hrsa.gov/gethealthcare/affordable/hillburton/index.html

NeedyMeds, Inc.

www.needymeds.org

Patient Access Network Foundation
1(866)316-PANF(7263) toll free
www.panfoundation.org

Patient Advocate Foundation
1(800)532-5274 toll free or 1(757)873-6668
www.patientadvocate.org

General Information

American Cancer Society (ACS)
1(800)ACS-2345 (227-2345) toll free
www.cancer.org

American Society of Clinical Oncology (ASCO)
1(888)651-3038 toll free or 1(517)483-1780
www.cancer.net

CancerCare, Inc.
1(800)813-HOPE (813-4673) toll free or 1(212)712-8400
www.cancercare.org

National Cancer Institute (NCI)
1(800)4-CANCER (422-6237) toll free or
1(301)451-6879
www.cancer.gov

National Health Information Center
1(800)336-4797 toll free
1(301)565-4167
www.nhic.org

Hereditary



Bright Pink

Chicago IL, 60654
www.bebrightpink.org

Facing Our Risk of Cancer Empowered, Inc. (FORCE)
1(866)288-RISK (288-7475) toll free or 1(954)255-8732 or toll free helpline- 866-288-7475
www.facingourrisk.org

Genetic Alliance, Inc.
1(202)966-5557
www.geneticalliance.org

Hereditary Cancer Center
1(800)648-8133 toll free or 1(402)280-2942
medschool.creighton.edu/medicine/centers/hcc/index.php

Hotlines

American Cancer Society
Many language transations offered. Call to learn if they can help you in your native language.
1(800)ACS-2345 (227-2345) toll free

CancerCare, Inc.
1(800)813-HOPE (813-4673) toll free or 1(212)712-8400

Body Image

Look Good…Feel Better
1(800)395-LOOK (395-5665) toll free
www.lookgoodfeelbetter.org

Shop Well With You
1(800)799-6790 toll free or 1(212)226-0466
www.shopwellwithyou.org

Intimacy



American Association of Sexuality Educators, Counselors and Therapists

1(202)449-1099
www.aasect.org

Insurance



Get Covered America

http://getcoveredamerica.org

HealthCare.gov
1(800)318-2596
www.healthcare.gov

CoverageForAll.org
www.coverageforall.org

Legal

Cancer Legal Resource Center
866-843-2572
www.cancerlegalresourcecenter.org

National Cancer Legal Services Network
www.nclsn.org

LGBT Support


GLMA
Gay and Lesbian Medical Association

1(202)600-8037
www.glma.org

The Mautner Project

1(866)MAUTNER (628-8637) toll free or
1(202)332-5536
www.mautnerproject.org

National LGBT Cancer Network
1(212)675-2633
www.cancer-network.org

Lymphedema

National Lymphedema Network
1(800)541-3259 toll free or 1(415)908-3681
www.lymphnet.org

Medical Specialty Societies

American Association for Cancer Research
1(866)423-3965 toll free or 1(215) 440-9300
www.aacr.org

American College of Radiology
1(800)ACRLINE (227-5463) toll free or 1(703)648-8900
www.acr.org

American College of Surgeons
1(800)621-4111 toll free or 1(312)202-5000
www.facs.org

American Society of Clinical Oncology (ASCO)
1(888)282- 2552 toll free or 1(571)483-1300
www.cancer.net

American Society of Hematology
1(202)776-0544
www.hematology.org

American Society of Plastic Surgeons
1(888)475-2784 toll free or 1(847)228-9900
www.plasticsurgery.org

American Society of Radiation Oncology
1(703)502-1550
www.astro.org

National Society of Genetic Counselors

1(312)321-6834
www.nsgc.org

Nutrition

American Institute for Cancer Research
Sponsors research and provides information on the link between nutrition, fitness, and cancer
1(800)843-8114 toll free or 1(202)328-7744
www.aicr.org

The Cancer Project
1(202)244-5038
www.cancerproject.org

Pain

American Chronic Pain Association
1(800)533-3231 toll free or 1(916)632-0922
www.theacpa.org

Global Access to Pain Relief Initiative
www.gapri.org

Pregnancy & Fertility

Hope for Two…The Pregnant with Cancer Network
www.pregnantwithcancer.org

MyOncofertility.org
1(866)708-FERT (3378) toll free
www.myoncofertility.org

Religious Support


F.R.I.E.N.D.S.
Christian Care Center
904- 270-9707 ext. 427
www.friendschristiancancercare.com

Sharsheret (Jewish)
1(866)474-2774 toll free or 1(201)833-2341
www.sharsheret.org

Research

American Association for Cancer Research
1(866)423-3965 toll free or 1(215) 440-9300
www.aacr.org

National Cancer Institute (NCI)
1(800)4-CANCER (422-6237) toll free
www.cancer.gov

Retreats

Most of the retreats are free or charge low fees. Call to learn more.

Betty J. Borry Breast Cancer Retreats
1(603)868-7599
www.bjbbreastcancerretreats.org

Camp Make-A-Dream
1(406)549-5987
www.campdream.org

Commonweal Cancer Help Program
1(415)868-0970
www.commonweal.org

Kokolulu Farm and Cancer Retreat
(808)889-9893
www.cancer-retreat.org

Life Beyond Cancer Foundation
(1800) 282- LBC (5223)
www.lifebeyondcancer.org

Smith Farm Center: Cancer Help Program
1(202)483-8600
www.smithfarm.com

Stowe Weekend of Hope
1(888)247-8693 toll free
www.stowehope.org

Survivorship

Cancervive
1(310)203-9232
www.cancervive.org

Lance Armstrong Foundation
1(877)236-8820 toll free or 1(512)236-8820
www.livestrong.org

National Coalition for Cancer Survivorship
1(888)650-9127 toll free or 1(301)650-9127
www.canceradvocacy.org

Transportation & Travel

Affordable accommodations

ACS Hope Lodge
1(800)ACS-2345 (227-2245) toll free cancer.org

Joe’s House
1(877)563-7468 toll free
www.joeshouse.org

National Association of Hospital Hospitality Houses Inc.
1(800)524-9730 toll free
www.nahhh.org

Free Air Travel

Air Charity Network
1(800)549-9980 toll free
www.aircharitynetwork.org

Corporate Angel Network, Inc.

1(866)328-1313 toll-free patient line or 1(914)328-1313
www.corpangelnetwork.org

Wigs

Halos of Hope
www.halosofhope.org

Young Adults

Planet Cancer
myplanet.planetcancer.org

Stupid Cancer
1(877)735-4673 toll free or 1(646)861-2565
www.stupidcancer.org

Young Survival Coalition
www.youngsurvival.org